In combat, we trust our buddies with our lives. We have their back and they have ours. When submitting to surgery, we trust the medical team with our lives, and usually that trust is not betrayed. But should we be willing to trust strangers with our very essence, our DNA?
Recently I was trying to solve a plot problem in the science fiction thriller, Triangle. The storyline relied on a particular individual being singled out by the government for monitoring, not for what he had done, but for who he was.
After finishing the novel, I went back to tie up loose ends in the plot. One such loose end involved a question: How could the government know that this one person out of millions had an unrecognized super power? He was a main character in the book and so I could not ignore that question. Certainly it helps the reader suspend disbelief if the plot elements are plausible, at least superficially.
I did not have to puzzle over that question very long before an advertisement for Ancestry DNA popped up on my computer screen.
That was it!
And so the following text flowed quickly.
The characters in this conversation are Sally Simpkin (AKA Pippi Longstocking) and Joshua Nilsson, identified below by their initials. She was trying to explain to Nilsson why she and her employers had been monitoring him.
SS: “[The government] detected that you had a high probability of having certain prescient capabilities.”
JN: “Forgive me for being a bit skeptical. Why can’t you tell me [how]?”
SS: “I’m not even cleared to know the process. I just took the assignment. It had something to do with a DNA sample you submitted.”
JN: “DNA? The only DNA I’ve submitted was for genealogy research.”
Triangle was published on May 21, 2017. On May 25, the following BBC headline appeared in my browser.
Ancestry.com denies exploiting users’ DNA. “A leading genealogy service, Ancestry.com, has denied exploiting users’ DNA following criticism of its terms and conditions.”
So, is this author also prescient like Nilsson? Or is this blogger merely a bit jaded.
Genealogy services have a difficult time competing in the world market. After all, there are only so many retired folks trying to trace their family history and solidify their genetic place in the world before their demise. Speaking for myself, I started my genealogy research years ago, picking it up from my grandmothers who told tales of Civil War Colonels and Carpet Bagger treachery, and murder. In fact, I’ve posted on this blog before about some of my discoveries.
With the advent of computers and the availability of free records from the Mormon Church, the ease of doing genealogical research exploded. Some of the software and services were either free or inexpensive. Of course, “free” doesn’t do much for a service provider’s cash flow. So, into each CEO’s mind comes, sooner or later, thoughts of monetization. How could Facebook’s Zuckerberg and others turn a free service into something that can make them gazillions? In the case of genealogy services, they started by charging a monthly access fee, and in one case, by enticing viewers to keep paying fees by waving images of fig leaves to attract their attention. That was a strange but brilliant ploy that worked very well on this researcher.
The next step in monetization is now universal: sell ads to companies who want access to the growing body of amateur genealogists. The final ploy, and by far the most ethically troubling, is selling information about users of computer services. First there were those pesky cookies, but now there is blood, or saliva more exactly.
For some companies, it is not enough to know what users search for. There is now a market for information about who you are, your very genetic essence, which is hidden even to you. But some companies like 23andme, Ancestry, MyHeritage, GPS Origins, Living DNA, and Family Tree DNA, let you take a peek into your genes, for a price.
The ironic thing is, this most personal information is not only freely given, but people actually pay the DNA harvesters to harvest their most sacred self. And of course, once that has been done, your genetic-identity can be sold (read the fine pint). While we are urged to protect ourselves from identity theft, isn’t it odd that we are at the same time being enticed into giving away our most precious identity of all, our DNA? And we seem to be doing so gladly, blithely unaware of the implications for us and our progeny.
But don’t let the natural skeptic in me show through too strongly. I do, after all, have faith that everything we’re being asked to store in the “cloud” is actually as secure as cloud storage facilities (whatever those are) claim. And I’m sure the secrets buried deep in our genes are forever kept private, and safe from hackers.
But then, there is that troubling Orwellian Consent Form.
Oh well, Sally Simpkin’s monitoring assignment in Triangle is purely fictional. Surely, no government would really have an interest in our genes.
Or would it?
